Santino seemed better today than he has in awhile. He is off the vent. He was extubated early this morning. He is on the cannula for a little help w/ oxygen. He seems to be breathing a lot easier than he was pre-vent. He is a lot happier.
He was awake for quite a bit during my visit. It was nice to see him alert and looking around. I worry about all the sedatives they give him. He has shivers a lot and it concerns me. His nephrologist thought maybe he is having withdrawals. Something I don't want to hear about my 1 month old baby.
The nurses only have orders to give him Tylenol, so that is good!
I was able to hold him. It has been a week since I held him last and it seems like it has been forever. He seemed happy to be held. I'm glad he knows his mamma.
We ended up not having the meeting w/ the Dr.s yesterday. It has been rescheduled for Monday. So we will see what comes of the conference.
There was something new today. Tino is getting a thyroid medication. I guess he was low on a couple of things which could affect his blood pressure. So somehow it is related to his thyroid. I have to research that a little more.
He did start his feeds again. They are starting slow. He is only getting 1 cc over a hour. When I called earlier this evening he had been taking it well. But when I asked if he has thrown up any I jinxed him. Right after I asked that question he threw up. The nurse and I think he is getting rid of all the mucus he accumulated because of the vent. I hope that is why.
Otherwise he is looking better. Like my baby boy again w/ his big beautiful eyes.
Until tomorrow.
Yvette
Our baby boy diagnosed with Lower Urinary Tract Obstruction/Post Urethral Valve(LUTO/PUV) at 20 wks, He was not expected to live due to pulmonary hypoplasia and renal failure, He was born June 19, 2009 @ 34 wks , He has miraculously survived and has began dialysis. Began Peritoneal Dialysis on June 22, 2009 then to Hemodialysis on June 27, 2009, back to PD July 7, 2009
Santino on one of his good days

Enjoying my binky!
Mommy time

This is the life in mommy's arms!
Daddy time

Checking out my daddy
Snoozing after bath time

Sponge baths are good!
Free of ventilator!!!

This is what I look like w/out edema
Daddy holding Tino!

Daddy changing Tino's diaper

Baby Tino in my arms!

Santino's eyes are open

Isn't he just the cutest!!

Big yawn!!!!!
Tino w/ hemodialysis catheter

not a pretty thing, poor baby!
In the Children's NICU

Santino after they placed the peritoneal catheter
Sounds like he is on a step forward...Its a very hard, long road in the NICU but its worth it when you get to bring your lil guy home....The bad memories are already starting to fade for me and Buddy hasnt been home but almost 4 months.....Keep your head up....the good days get better and more frequent
ReplyDelete