Our lil guy had a break from dialysis today. So John was able to hold him when we arrived at the hospital this morning. Tino was very content in his daddy's arms. It was very sweet to watch. Daddy even got a little sleepy with his baby boy. I was a little jealous but I was able to kiss him more :). John was very happy to finally hold him. They spent a good hour together.
While we were there the Dr. decided to take Tino off the ventilator. We weren't able to watch, thank goodness because I would have been a nervous wreck. It went well. They do have him on another form of oxygen (Cpap) but it just goes in thru his nose a little vs. the annoying tube down his throat. ( He looks like a baby elephant w/ the tube. ) It took a while to settle him down after that. We finally heard a small cry from him. It is a hoarse cry from having the tube in for so long. John and I took turns comforting him. When we left around 2:30 he was asleep. At 6pm when we called and checked on him he was still sleeping. I was glad to hear that because we wanted to stay and comfort him but had to get home to the other munchkins.
The feedings that they did yesterday didn't go well. He ended up spitting them both up. The nurse said he has a lot of air in his tummy so it might of made it upset.
Tomorrow will be another day of dialysis. He was swelling up again from not having the treatment today. We shall see how he does tomorrow.
Our baby boy diagnosed with Lower Urinary Tract Obstruction/Post Urethral Valve(LUTO/PUV) at 20 wks, He was not expected to live due to pulmonary hypoplasia and renal failure, He was born June 19, 2009 @ 34 wks , He has miraculously survived and has began dialysis. Began Peritoneal Dialysis on June 22, 2009 then to Hemodialysis on June 27, 2009, back to PD July 7, 2009
Santino on one of his good days
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Enjoying my binky!
Mommy time
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This is the life in mommy's arms!
Daddy time
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Checking out my daddy
Snoozing after bath time
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Sponge baths are good!
Free of ventilator!!!
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This is what I look like w/out edema
Daddy holding Tino!
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Daddy changing Tino's diaper
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Baby Tino in my arms!
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Santino's eyes are open
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Isn't he just the cutest!!
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Big yawn!!!!!
Tino w/ hemodialysis catheter
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not a pretty thing, poor baby!
In the Children's NICU
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Santino after they placed the peritoneal catheter
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