I miss my lil peanut everyday but today was the first day I haven't gone to see him. I mentally prepared myself for today a few days ago. I needed a full day to run errands and do some housecleaning. I did a lot better than I thought I would. I only cried a little this morning when I called to check on Tino. He had a very kind and understanding nurse so she helped put me at ease. I only called every 3 hours, not too obnoxious. He had a very good day. He slept, ate, and pooped like any normal baby. Which is great!
The simple things we can take for granted. Those simple things are extraordinary to me now. Each little progression Tino makes is just so amazing. The fact that he is here w/ us is amazing! I still am in awe of him and of our Savior who obviously had a major part in our son's existence. My son has a purpose to be here w/ us and who knows if we will see the outcome or understand it. I think he has already touched so many people in different ways even if they have not realized it yet. I hope they do. When I was pregnant I prayed to God everyday that he allow Santino to remain w/ us and be used for His greater good. I don't know if he will be a "Samuel" but whatever God has planned for us. I pray for strength, patience, understanding, and the willingness to make whatever sacrifices of myself that need to be made. I know we have a long road ahead of us and each day I have w/ my baby will be great. I hope Santino thinks it's great also. Who knows what I'm saying makes any sense. Some of the thoughts that go thru my mind? I hope I don't sound too out there! I think it is time for bed.
A little night cap:)
" Therefore by Him let us continually offer the sacrifice of praise to God, that is, the fruit of our lips, giving thanks to His name. But do not forget to do good and to share, for with such sacrifices God is well pleased." Hebrews 13:15,16
Our baby boy diagnosed with Lower Urinary Tract Obstruction/Post Urethral Valve(LUTO/PUV) at 20 wks, He was not expected to live due to pulmonary hypoplasia and renal failure, He was born June 19, 2009 @ 34 wks , He has miraculously survived and has began dialysis. Began Peritoneal Dialysis on June 22, 2009 then to Hemodialysis on June 27, 2009, back to PD July 7, 2009
Santino on one of his good days
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Enjoying my binky!
Mommy time
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This is the life in mommy's arms!
Daddy time
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Checking out my daddy
Snoozing after bath time
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Sponge baths are good!
Free of ventilator!!!
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This is what I look like w/out edema
Daddy holding Tino!
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Daddy changing Tino's diaper
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Baby Tino in my arms!
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Santino's eyes are open
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Isn't he just the cutest!!
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Big yawn!!!!!
Tino w/ hemodialysis catheter
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not a pretty thing, poor baby!
In the Children's NICU
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Santino after they placed the peritoneal catheter
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