We went and saw our lil tough guy for a little while today. It was difficult visiting him w/ the kids. They wanted to see him but only lasted a few minutes in the NICU. They like holding his little hand when they see him and get excited if he squeezes back. It is wonderful seeing my kids together.
Ysa was very interested in all the machines that Tino is hooked up to. She was staring intently at everything and listening to what the nurse had to say. She may be my future Doctor. She is very sweet and said she wants Tino to be able to come home without having to bring the medicine with him. So do I.
Tino was a little more puffy today. His abdomen was very swollen from the fluid sitting in him. It looks so uncomfortable it just breaks my heart seeing him like that. He was off pain meds today so I was able to see more movement from him. He moved his little hands around and the nurse said he was grabbing on to the lines. I hope we see more progress tomorrow when we visit. Any little improvement will be wonderful. Tomorrow is John's bday so it would be a nice gift to him to see his lil guy have a little milestone.
Our baby boy diagnosed with Lower Urinary Tract Obstruction/Post Urethral Valve(LUTO/PUV) at 20 wks, He was not expected to live due to pulmonary hypoplasia and renal failure, He was born June 19, 2009 @ 34 wks , He has miraculously survived and has began dialysis. Began Peritoneal Dialysis on June 22, 2009 then to Hemodialysis on June 27, 2009, back to PD July 7, 2009
Santino on one of his good days

Enjoying my binky!
Mommy time

This is the life in mommy's arms!
Daddy time

Checking out my daddy
Snoozing after bath time

Sponge baths are good!
Free of ventilator!!!

This is what I look like w/out edema
Daddy holding Tino!

Daddy changing Tino's diaper

Baby Tino in my arms!

Santino's eyes are open

Isn't he just the cutest!!

Big yawn!!!!!
Tino w/ hemodialysis catheter

not a pretty thing, poor baby!
In the Children's NICU

Santino after they placed the peritoneal catheter
No comments:
Post a Comment