Today was the second day of Hemo for Tino. He looked so much better. Between today and yesterday they were able to pull out 500 cc's of fluid from his lil body. He is back to his birth weight. He still has quite a bit of edema (swelling) but nothing like 2 days ago. We were hoping to finally see his lil eyes open. He was trying but was only able to see a little sliver of his eye. The docs are hoping to take him off the ventilator tomorrow. It depends on his blood gases between tonight and tomorrow. I'm a little nervous but it will be nice to see his face free from that big tube. The poor guy kept gagging on it today. I'm sure he will be very happy to have his mouth/throat free. If that all goes well they are also talking about starting him on some feeding. Tomorrow may be a big day for him.
We have our other two back w/ us today. They spent the wknd at their Poppy's house. They had fun renting movies, swimming, and eating ice cream. It seems like they are handling everything pretty well. They spent a little bit of time w/ their baby brother today. They are both very sweet with Tino. Anthony is even sharing his favorite blankie w/ him.
We should have some good news to share tomorrow. Keep us in your prayers.
Our baby boy diagnosed with Lower Urinary Tract Obstruction/Post Urethral Valve(LUTO/PUV) at 20 wks, He was not expected to live due to pulmonary hypoplasia and renal failure, He was born June 19, 2009 @ 34 wks , He has miraculously survived and has began dialysis. Began Peritoneal Dialysis on June 22, 2009 then to Hemodialysis on June 27, 2009, back to PD July 7, 2009
Santino on one of his good days
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Enjoying my binky!
Mommy time
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This is the life in mommy's arms!
Daddy time
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Checking out my daddy
Snoozing after bath time
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Sponge baths are good!
Free of ventilator!!!
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This is what I look like w/out edema
Daddy holding Tino!
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Daddy changing Tino's diaper
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Baby Tino in my arms!
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Santino's eyes are open
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Isn't he just the cutest!!
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Big yawn!!!!!
Tino w/ hemodialysis catheter
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not a pretty thing, poor baby!
In the Children's NICU
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Santino after they placed the peritoneal catheter
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