Today was a exciting day! We finally got to see our baby boy with his bright eyes open. He was very active today w/ a lot of squirming and moving of his arms. The nurse suggested I buy him some mittens to keep him from pulling on his tubes. He is not a happy boy with those tubes on his face. Who can blame him? Yes, he is still on the ventilator. The docs are waiting for better numbers from his blood gases and a couple of other things. Maybe soon.
He had another round of dialysis today. It went well. They were able to pull off another 400 cc's from him. That is a total of 900 cc's in the last 3 days. That is a lot of fluid!!!! He will have another treatment tomorrow.
The kids went w/ us today. They behaved themselves, thankfully. John and I were both pretty tired. We have friends that have offered to watch them the next couple of days, so that will be nice. I'm going to wrap this up now so I can finally go to bed at a decent hour. Goodnight!!
Our baby boy diagnosed with Lower Urinary Tract Obstruction/Post Urethral Valve(LUTO/PUV) at 20 wks, He was not expected to live due to pulmonary hypoplasia and renal failure, He was born June 19, 2009 @ 34 wks , He has miraculously survived and has began dialysis. Began Peritoneal Dialysis on June 22, 2009 then to Hemodialysis on June 27, 2009, back to PD July 7, 2009
Santino on one of his good days
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Enjoying my binky!
Mommy time
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This is the life in mommy's arms!
Daddy time
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Checking out my daddy
Snoozing after bath time
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Sponge baths are good!
Free of ventilator!!!
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This is what I look like w/out edema
Daddy holding Tino!
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Daddy changing Tino's diaper
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Baby Tino in my arms!
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Santino's eyes are open
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Isn't he just the cutest!!
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Big yawn!!!!!
Tino w/ hemodialysis catheter
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not a pretty thing, poor baby!
In the Children's NICU
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Santino after they placed the peritoneal catheter
Hey I just wanted to tell you i've been keeping up with the updates and praising the Lord right there with you guys. I am so proud of your lil fighter.
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