Here's a quick update, on behalf of my wife:
Santino apparently got tired of being cramped in Mom's belly with no amniotic fluid, and decided that today was the day he would grace us with his presence. I'll give you the quick facts and let Yvette fill in the details once she is able to. Santino was born at 1:35 pm yesterday (6/19/09), via an emergency C-Section and weighed 6 lbs/2 ounces. As we expected would happen, they had to intubate the baby immediately and put him on a ventilator. Despite the fact that he's on a ventilator, the doctors are encouraged by the level of lung function they have seen so far. There was some trouble getting a catheter inserted at first, but the urologist was finally able to get it in and drain the fluid from Santino's bladder. In a couple of days we should know if his kidneys are going to be able to regain any of their function now that the pressure in his bladder has been relieved. Other than the various tubes and lines sticking out of him, he actually looks pretty good now. Our other 2 kids were able to visit Santino in the Neonatal Intensive Care Unit, and Yvette was able to spend a little bit of time with the baby after she was released from the recovery unit. I've posted a few of our first pics and we will add updates as Santino's case progresses.
Santino on one of his good days
Enjoying my binky!
Mommy time
This is the life in mommy's arms!
Daddy time
Checking out my daddy
Snoozing after bath time
Sponge baths are good!
Free of ventilator!!!
This is what I look like w/out edema
Daddy holding Tino!
Daddy changing Tino's diaper
Baby Tino in my arms!
Santino's eyes are open
Isn't he just the cutest!!
Big yawn!!!!!
Tino w/ hemodialysis catheter
not a pretty thing, poor baby!
In the Children's NICU
Santino after they placed the peritoneal catheter
Praise God, that he is doing well. I am so happy to hear this. Please continue to keep us updated.
ReplyDeleteCongratulations on the birth of your little miracle! My son was also born with LUTO and will be getting a kidney transplant over the next few months. He just turned one at the beginning of this month. He is worth all the "crap" that comes along with a diagnosis such as this! Let me know if you need anything. My son was a 31 weeker and in the NICU for 7 weeks and started PD while there. Hugs to you!
ReplyDeleteI know how busy you are right now, but thanks for getting back to me. PLEASE let me know if there is anything I can do. I know PD seems VERY intimidating at first, but you really get used to it pretty quick. If you are overwhelmed please contact me. Also I am going to include Matthew's caringbridge site. If you look at the very end of the journals you can start from day one in the NICU and see how Matthew did with PD and get a one up on somethings you can expect. Takes the uncertainty out of it and hopefully makes it less scary for you. Hugs!
ReplyDeletehttp://www.caringbridge.org/visit/fightingmatthew