Mommy time

Mommy time
This is the life in mommy's arms!

Daddy time

Daddy time
Checking out my daddy

Snoozing after bath time

Snoozing after bath time
Sponge baths are good!

Free of ventilator!!!

Free of ventilator!!!
This is what I look like w/out edema

Daddy holding Tino!

Daddy holding Tino!

Daddy changing Tino's diaper

Daddy changing Tino's diaper

Baby Tino in my arms!

Baby Tino in my arms!

Santino's eyes are open

Santino's eyes are open
Isn't he just the cutest!!

Big yawn!!!!!

Tino w/ hemodialysis catheter

Tino w/ hemodialysis catheter
not a pretty thing, poor baby!

In the Children's NICU

In the Children's NICU
Santino after they placed the peritoneal catheter

Tuesday, June 16, 2009

My other PUV boy

Today I go in for another NST (Non stress test). I have been doing these tests since 28 wks. I haven't tired of them yet because it is so good to hear lil Santino's heartbeats. There is always that fear that something may happen to him inutero but when I hear his strong heartbeat it is reassuring. The doc always asks if I'm measuring kick counts and I say constantly. Santino seems to know also when I worry because he will give me a strong kick or a big stretch.
Anthony will be joining me today to the Dr. while big sis is with a friend. I did have to promise him McD's for lunch. I think he will enjoy hearing his lil brothers heart beating. He is very excited to meet his lil bro but also knows that he is very sick. Anthony is always praying for him and almost brings me to tears sometimes when we are at the dinner table praying. He is a very sweet boy. Anthony has a understanding of what his lil bro is going through. Anthony also had PUV as a baby but was not diagnosed until he was 2 wks old. He was in the PICU for 8 days following surgery to ablate the valve. It was very scary at the time but nothing like what we are experiencing now. Anthony was able to recover very well from his condition and it was believed it didn't happen until later in my pregnancy. He does only have function of his right kidney and has to take medication 3x a day. He is a trooper taking his meds but now the request is to have it with chocolate milk which I don't blame him because it does taste horrible. He also has to have check ups every 6 mos with his Nephrologist and Urologist. Which require a blood test and ultrasound. He still isn't keen with the blood test but he thinks the ultrasound is funny. The big question is why did this happen again to one our baby boy's? We don't know and so far the Dr.s we have met don't have a answer for us either. They haven't ever seen a recurrence in families like this before. Well I can go on and on but I have to get to my appt. I'll continue on this later.

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