Santino is doing well in the IMU. He has his own pad to himself, some natural light, a lil t.v., he is all set. I do still miss the NICU nurses. I miss the one on one he had there. Don't get me wrong I am glad he is getting ready to come home. It is hard not being able to spend as much time with him as I would like. So when I'm not there w/ him I want him to have the attention he needs and unfortunately the nurses have other patients to take care of as well. Guilt!!!
He is doing really well on the PD cycler. He is at 130cc's on his fill now. He is down to 14 hrs a day on dialysis. The goal before he gets discharged is 150 cc's/ 12 hrs. Almost there!
John and I had our first training on how to use the cycler. It seems pretty easy to figure out. The only intimidating thing about it is keeping everything very sterile.
We will be vigilant hand washers.
So from now until he comes home we will have training twice a week on how to use the cycler.
Some have asked his weight. It does vary because he retains fluid. The most recent weight he was 8lbs 5 oz. He will be 2 mos tomorrow. Unbelievable!!
Santino on one of his good days
Enjoying my binky!
Mommy time
This is the life in mommy's arms!
Daddy time
Checking out my daddy
Snoozing after bath time
Sponge baths are good!
Free of ventilator!!!
This is what I look like w/out edema
Daddy holding Tino!
Daddy changing Tino's diaper
Baby Tino in my arms!
Santino's eyes are open
Isn't he just the cutest!!
Big yawn!!!!!
Tino w/ hemodialysis catheter
not a pretty thing, poor baby!
In the Children's NICU
Santino after they placed the peritoneal catheter
Gosh i can't believe it's been 2 months already. WOW look how much has gone on in just 2 months, how much he's been through, how well he's doing. God is so good.
ReplyDeleteYAY Santino! It sounds as if he's doing awesomely!
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