Yep, Santino had his immunization shots today. He had 3 on his poor lil legs and 1 was put in his ng tube. He was obviously not a happy camper. He screamed, of course, but as soon as I picked him up he was fine. He was just not having a good day. He was already a little fussy from having some gas I believe. The docs started him on bolus feeds so he was getting 60 cc's in a hour. I don't think his tummy was ready for that yet. He did do fine yesterday with it but today not so hot. They were also adding some rice cereal to his milk to help with a diarrhea issue he has right now. His poor lil bum is red and raw, OUCH!!
His dialysis seems to be going pretty good. He was a little puffy today. But the renal docs think he looks okay. They may change his solution to 4.5 % tomorrow. They did take a chest x-ray just to make sure his lungs are fine. They are good. He is at 150 cc's /12 hrs now. So we are getting close to coming home.
On Monday he has an appt. w/ Urology. He will be getting some minor surgery to ablate the PUV. If there still is a valve to ablate. He will have to be sedated and put on a vent for that. Pooey!! The Urologist said we will have to catheterize him ourselves every so often to make sure scare tissue doesn't form. That is better than having to carry around a foley catheter bag.
That is all the newest that I can think of right now. I will update on how the surgery goes on Monday.
Santino on one of his good days
Enjoying my binky!
Mommy time
This is the life in mommy's arms!
Daddy time
Checking out my daddy
Snoozing after bath time
Sponge baths are good!
Free of ventilator!!!
This is what I look like w/out edema
Daddy holding Tino!
Daddy changing Tino's diaper
Baby Tino in my arms!
Santino's eyes are open
Isn't he just the cutest!!
Big yawn!!!!!
Tino w/ hemodialysis catheter
not a pretty thing, poor baby!
In the Children's NICU
Santino after they placed the peritoneal catheter
Wow, 60 mls an hour is a lot! My 18 month old can't handle that kind of volume. How many ounces are they expecting him to take a day? My Logey can't handle volume so now that he is older he is on 16 oz of a very high calorie formula and 5 oz a day of breastmilk. YAY on being at 150 cc/12 hrs now! I will be praying that all goes well with his surgery on Monday and that he is home soon!
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