Tino was doing better today. They were able to wean him back to a rate of 12 on the vent. They were thinking they would be able to extubate him later today or tomorrow am. But, the surgeon wants to remove his hemo cath. She is worried of chance of infection. So that means no G-tube anytime soon and remaining intubated for surgery.
His nurse last night tried to start feeds again but didn't work out so well. She was only giving him 6 cc's but his tummy didn't like it and threw it up. So the docs don't want to feed him until he is extubated. Who knows when my hungry boy will eat again.
He looked a little better. The nephrologist put him on a new mixture of dineal (25 cc's ea. of 4.25 & 2.25). It seems to be working, he is not as puffy. His skin looked a little bluish, but they didn't seem to be concerned. I hope having that extra fluid off helps him recover from whatever was going on w/ his lungs. I so worry about his lung development! Being w/out amniotic fluid for 10 wks inutero I'm sure was not good for him. It is a miracle he has made it this far.
Tomorrow daddy will be visiting w/ him. I have many people suggesting I take a day of relaxation. I will be taking the kids to the beach w/ some friends. I'm going to do my best to enjoy myself. I'm sure I will be worrying about him having minor surgery to remove the cath. His daddy will be their with him and his Father above watching over him. Keep him your prayers that he tolerates it well.
In His Grace,
Yvette
Our baby boy diagnosed with Lower Urinary Tract Obstruction/Post Urethral Valve(LUTO/PUV) at 20 wks, He was not expected to live due to pulmonary hypoplasia and renal failure, He was born June 19, 2009 @ 34 wks , He has miraculously survived and has began dialysis. Began Peritoneal Dialysis on June 22, 2009 then to Hemodialysis on June 27, 2009, back to PD July 7, 2009
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