My husband went back to work tonight. He has been off since Santino was born. We have been very spoiled having him home these past 3 1/2 weeks. I'm sure it is going to be hard on John. I couldn't imagine having to work right now w/ all that is on our minds. Tino has been doing very well the past few days so it does make it a little easier. We just pray he keeps moving forward.
The VCUG that Tino had on Friday went fairly well. Tino got a little upset being held down and having water poured over him (to make him pee). Overall he tolerated the test pretty good. The test concluded that his ureters are dilated, he has reflux of both kidneys, and he has post urethral valves. We all pretty much knew this already but they had to confirm it w/ the vcug.
We spoke w/ the urologist also and at some point he will be doing a vesicostomy on Tino. This requires putting a little hole below Tino's belly button so his bladder can drain out into his diaper. It doesn't sound pretty but that is what needs to be done.
Tino's PD is going well. His feeds are good. He is up to 30 cc's of breast milk. I believe tomorrow they will fortify the milk w/ formula to give him some extra calories. The nurses are trying to bottle feed him when he is awake. He still hasn't gotten the hang of it yet. The occupational therapist says that is normal for babies this young/premature. She was happy that he sucks so well on a paci. We'll keep working on the bottle feeds. That is really about it. He did get moved into a big boy crib. He has more room to stretch out now and have some toys to look at. I pray he continues to have good days like these. I feel so blessed to have him here with us and to be able to hold him and smell his sweet scent. Each day is so precious.
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