My lil boy and I had a nice visit today. John and the kids stayed home so I could spend more time with the baby boy. But John gets to visit on his own tomorrow :(.
I arrived at the hospital shortly after Tino finished w/ dialysis, so he was zonked out! After about a hour of just staring at him the nurse let me hold him. We cuddled for almost 2 hours. It was nice to have him in my arms again and just stare at his cute little face. He gave a little smile while he was sleeping . He didn't want to wake up for his momma. I don't blame him, after having 800 cc's pulled from him between today and yesterday. He can sleep all he wants.
After he was put back into his bed the nurse decided to try and take him off the nasal cannula. The thing kept popping out of his nose anyhow. While I was still there he seemed to be breathing fine on his own. That will be good if he is free from that from his face. He does not like tubes on his face! I hope when I call and check on him he is still breathing unassisted. We'll have to praise God for that!!
That was the excitement for today. We'll see what he has in store for John tomorrow.
Good night!
Our baby boy diagnosed with Lower Urinary Tract Obstruction/Post Urethral Valve(LUTO/PUV) at 20 wks, He was not expected to live due to pulmonary hypoplasia and renal failure, He was born June 19, 2009 @ 34 wks , He has miraculously survived and has began dialysis. Began Peritoneal Dialysis on June 22, 2009 then to Hemodialysis on June 27, 2009, back to PD July 7, 2009
What exciting news! Thank God! I am continuing to pray for your little guy. These dialysis babies are fighters and before you know it you'll be where we are at which is getting ready for transplant. It will feel like it takes forever and the struggles will be hard but when you get to this side of dialysis (towards the end)it will all feel worth the struggles.
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