Well here I am again. I haven't posted much because Tino has been doing so well. He has been acting like a normal baby: drooling, waking up in middle of the night, babbling, and just giving us great joy and sleepless nights. All has been too smooth so we had to throw it out of whack!
We are at the hospital right now waiting for our precious Tino to come out of surgery. He was admitted around 8 am for 4 surgeries. Tino is having a g-tube placement, fundo, hemo cath placement, and a bilateral hernia repair. He is going to have a few tender spots on his lil body :(
We, along with the doctors decided to have the g-tube placement done. Hopefully with the g-tube he will start to gain weight a lot more quickly. If he gains weight that will bring us closer to transplant weight of 22 lbs. The fundo is a surgery that wraps his stomach around the esophagus to prevent reflux. So no more projectile vomit or burping. The hernias he has had since birth and his urologist was waiting for another surgery to come up before tackling those. And last but not least the hemo cath placement, that is in case they are not able to do peritoneal dialysis on him. He usually becomes fluid overloaded quickly so he will be needing some type of dialysis while he heals. This is a lot for my little guy but it is all to prepare him for transplant and life after transplant.
Tino's nephrologist did mention on Monday that she would like to begin the process for transplant. She is going to get the paperwork in order so John and I can start being tested to see if we can be potential donors. I was very excited to hear the word transplant come out of Dr. Benador's mouth! I didn't ask too many questions because I wanted to get through this surgery first. After this I will be asking lots of questions!
Well back to the waiting room for me. Hopefully we will be able to see our baby boy by 1-1:30pm. It will be nice to see his cute face without the nj feeding tube taped on. I think he will be happy too!
Thank You for your prayers!
Yvette & Family
Santino on one of his good days
Enjoying my binky!
Mommy time
This is the life in mommy's arms!
Daddy time
Checking out my daddy
Snoozing after bath time
Sponge baths are good!
Free of ventilator!!!
This is what I look like w/out edema
Daddy holding Tino!
Daddy changing Tino's diaper
Baby Tino in my arms!
Santino's eyes are open
Isn't he just the cutest!!
Big yawn!!!!!
Tino w/ hemodialysis catheter
not a pretty thing, poor baby!
In the Children's NICU
Santino after they placed the peritoneal catheter
Hi my name is Carla Datorre, my son Andre was born on January 28th 2010 with PUV, he is on PD Dialysis at the moment and is going to surgery tomorrow to change the catherer due to many episodes of peritonitis. I would like to speak to you and share our experience. Thanks! I am in Miami. How do we connect. My email is cdatorre@msn.com. Hope to hear from you.
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