Mommy time

Mommy time
This is the life in mommy's arms!

Daddy time

Daddy time
Checking out my daddy

Snoozing after bath time

Snoozing after bath time
Sponge baths are good!

Free of ventilator!!!

Free of ventilator!!!
This is what I look like w/out edema

Daddy holding Tino!

Daddy holding Tino!

Daddy changing Tino's diaper

Daddy changing Tino's diaper

Baby Tino in my arms!

Baby Tino in my arms!

Santino's eyes are open

Santino's eyes are open
Isn't he just the cutest!!

Big yawn!!!!!

Tino w/ hemodialysis catheter

Tino w/ hemodialysis catheter
not a pretty thing, poor baby!

In the Children's NICU

In the Children's NICU
Santino after they placed the peritoneal catheter

Monday, February 22, 2010

A new accessory for Tino

It has been too long since I last posted. I haven't been in much of a writing mood. I usually type how I think and that is usually random thoughts. I drive my husband crazy!! He is the writer of the family and my 8 yr old daughter. Anyhow, I will try and stay focused.
Tino has had a good new year. We have stayed out of the hospital since are last scare in Nov.. He has been pretty healthy for the most part, just the occasional sniffles. Brother and Sister contribute their germs oh so generously.
We haven't had to make any drastic changes to any of his medications. The only one is his calcitriol med. His labs were in the low 1,ooo's and it should be in the 300's for his calcium. We are working on that one.
His weight has been increasing slowly. He is hovering around 15.8 lbs. We have about 7 more to go for transplant!!
His dialysis has been working well for him. His blood pressure has been decent, not the greatest. Usually the low 100's/ 60's.
So overall he is doing pretty good. He is being a normal jolly baby for the most part.
We are still taking him to physical and occupational therapy. He has learned how to roll over now. This should get interesting with his nj tube. He has gotten himself all tangled up.
Still working on his upper body strength. He isn't sitting on his own yet but we will get there.
He is making great progress for all he has been through. Amen!
Tomorrow we take him in to get his Doc Band (helmet). This is a helmet he will have to wear 23 hrs out of the day. It is to help reshape his head. His lil noggin grew a little crooked while he was growing in my tummy. Since I didn't have any amniotic fluid for the last 14 wks he didn't have any space to move. So his head being stuck under my ribs they took that shape I guess you could say. I will hopefully get some pictures up soon. That is all that I have in me for now.
Got to go get ready for our busy day tomorrow!

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