Journey with our little Santino

Well I'm in my 33 wk of pregnancy now and a lot has happened since we first found out we were expecting. I will back track as much as possible for those that are interested in any info on these cases of PUV. A quick update on what is happening w/ our lil Santino. We are expecting a little boy who has been diagnosed with LUTO/PUV. This condition causes a blockage so the baby is not able to urinate causing a lack of amniotic fluid. I have not had any amniotic fluid since 24 wks. Without any amniotic fluid the babies lungs may not develop properly. The other big health issue will be renal failure. From this point on it is just a waiting game until he is born and what the doctors can do to help him. He is growing well which is reassuring. My last appt. ( wk and 1/2 ago )with the perinatologist, Santino measured in the 97th percentile and weighs approx. 6lbs 3 oz. He will be a big boy if we make it to 39 wks. The Dr. also saw chest/lung movement. We are not sure what all this will really mean ultimately. I have been getting some really uncomfortable contractions since Mon. night. They haven't been consistent though, which is good. I am nervous about the delivery but anxious/excited to meet my precious baby boy. I am doing my best to remain optimistic but also realize there is the great possibility he will not remain long with us. We continue to pray for his lung and kidney development.