Yesterday was a rough day for our lil guy. We thought we were making some progress w/ getting his chest tube out . Then on our way to visit we got a call from the NP that his PD catheter was leaking again. So they stopped his PD dialysis and were going to put in a catheter to begin Hemodialyis. I was freaking out a little worrying about my baby having surgery involving veins/arteries. The procedure took about 45 mins and it went well. They ended up putting an adult size catheter, so it looks pretty huge sticking out of his abdomen. We were planning on visiting w/ him for a little while, when his new catheter began bleeding a lot!! John says it wasn't that much but it scared the heck out of me. The nephrologist ended up being called in at midnight and she decided to give him a blood clotting med. to stop the bleeding. So finally around 1 am it seemed to be working. The nurse strongly encouraged us to go home at this point to get some rest.
Tino began the hemodialysis this morning and it went well. The treatment itself was about 3 hours. He looked a lot better. He wasn't as puffy and swollen. He was also a lot more active. He actually pulled out a tube from his mouth and was pulling at his oxygen tube. The lil stinker. We got to see a few lil yawns from him and couple of sad/crying faces. We don't hear a cry from him because of the oxygen tube in his throat but we can tell from his lil red face. We are hoping by tomorrow we will finally see him with his eyes open. They have been swollen shut this whole time. We are praying for another good day tomorrow.
Our baby boy diagnosed with Lower Urinary Tract Obstruction/Post Urethral Valve(LUTO/PUV) at 20 wks, He was not expected to live due to pulmonary hypoplasia and renal failure, He was born June 19, 2009 @ 34 wks , He has miraculously survived and has began dialysis. Began Peritoneal Dialysis on June 22, 2009 then to Hemodialysis on June 27, 2009, back to PD July 7, 2009
You will notice with hemo...the changes are dramatic. When Matthew was on PD...his levels NEVER reached "normal". After 2.5 hours twice a week...his creatinine and BUN are in normal range post dialysis. :) It will definitely take off the edema and make him feel better overall. He will probably get tired the evening of and the next morning too, but then he will get hit with energy. Everyone has such negative feelings towards hemo...I think it is wonderful!
ReplyDeleteAnd it can be temporary until they can get a new pd line in so that you can do that at home. Let me know if you have questions!! hugs!