Santino is home!!!

Santino is finally home. He was able to come home yesterday after much hard work from our case manager. It almost wasn't going to happen because of insurance issues. What a nightmare! The case manager was able to get everything in place so we would get all of Tino's medical supplies. We also have a nurse visiting us at home to make sure we are comfortable with everything. John and I are still trying to figure out a schedule that works best for us. The schedule he was on at the hospital was too spread out. We will get there hopefully in the next couple of days.

The first night was okay. He had a lot of spit up episodes. Which is to be expected unfortunately. He has issues the first hour of his dialysis. All the fluids in his lil tummy is just too much for him. He usually has to poop, which causes him to spit up. Last night he spit all his meds we had just given him. Other than the spit up he is doing pretty well. I think he is enjoying being home. He is giving us lots of smiles.

We definitely have our work cut out for us but it is all worth it for our lil guy. I just have to figure out how I'm going to take care of my other two also?