Mommy time

Mommy time
This is the life in mommy's arms!

Daddy time

Daddy time
Checking out my daddy

Snoozing after bath time

Snoozing after bath time
Sponge baths are good!

Free of ventilator!!!

Free of ventilator!!!
This is what I look like w/out edema

Daddy holding Tino!

Daddy holding Tino!

Daddy changing Tino's diaper

Daddy changing Tino's diaper

Baby Tino in my arms!

Baby Tino in my arms!

Santino's eyes are open

Santino's eyes are open
Isn't he just the cutest!!

Big yawn!!!!!

Tino w/ hemodialysis catheter

Tino w/ hemodialysis catheter
not a pretty thing, poor baby!

In the Children's NICU

In the Children's NICU
Santino after they placed the peritoneal catheter

Saturday, October 10, 2009

We are back at home!

We just had two nights in the IMU. Tino is feeling a lot better. He is back to his smiley self. He ended up needing breathing treatments every 4 hrs and some suctioning of his nose and throat. He had bronchiolitis which I guess is different from bronchitis? Hopefully he won't continue needing treatments because of his underdeveloped lungs.
The hospital stay actually wasn't too bad. We got to see some of our previous nurses. They were surprised by how much Santino has grown. He is a little over 12 lbs now! I actually got some rest compared to what I get at home.
The first night the nurse set up his dialysis while I dozed off. She gave me a mask to wear while she was setting up. Well I guess I was so tired I fell asleep with it on and slept that way for a while. She thought it was quite amusing. It was nice to be able to sleep and know someone else will take care of him if he needs anything.
We will be back to the hospital on Monday for some lab work. The nephrologist wants to check on his potassium level which was high. She ended up changing his formula to Similac PM 60/40. She also increased his dialysis fill to 180 ccs. He tolerated it well last night.
Hopefully he sleeps as well tonight as he did last night. He did have a little help with oxygen last night. I hope he sleeps well , so I can too!

Friday, October 9, 2009

Back in the IMU

Well lil Santino is back in the IMU here at Rady Childrens Hospital. We came in yesterday for his dialysis clinic for labs and ended up going to the ER and getting admitted. He had been having some labored breathing and congestion so I knew he had a cold. His dialysis nurse thought it would be best for him to get checked out rather than go home. So we went to the ER and they kept him for breathing treatments and some suctioning.
Tino does seem to feel better w/ his treatments and suctioning of the mucus. He slept more comfortably last night than he has in a few nights. Me not so much. I'm glad he isn't too sick. They said he has bronchitis. No H1N1 or RSV. Hopefully by tomorrow he will be discharged.
He has been out of the hospital for a month. I was hoping it would be a lot longer. I'm glad he is getting the care and love that he needs here at Childrens.

Friday, October 2, 2009

Santino goes to the Zoo

Santino had his first trip to the San Diego Zoo today. He had a great time sleeping thru it. When he was awake he enjoyed looking up at the canopy of leaves. He was a well behaved lil boy.
Tomorrow we are having our first overnighter out of town. Tino is doing his first travel. I'm a little anxious but I'm sure it will be fine. We have a long list of supplies that we will need to take. It is all good. Everyone will be excited to see lil guy. Wish us luck!