We just had two nights in the IMU. Tino is feeling a lot better. He is back to his smiley self. He ended up needing breathing treatments every 4 hrs and some suctioning of his nose and throat. He had bronchiolitis which I guess is different from bronchitis? Hopefully he won't continue needing treatments because of his underdeveloped lungs.
The hospital stay actually wasn't too bad. We got to see some of our previous nurses. They were surprised by how much Santino has grown. He is a little over 12 lbs now! I actually got some rest compared to what I get at home.
The first night the nurse set up his dialysis while I dozed off. She gave me a mask to wear while she was setting up. Well I guess I was so tired I fell asleep with it on and slept that way for a while. She thought it was quite amusing. It was nice to be able to sleep and know someone else will take care of him if he needs anything.
We will be back to the hospital on Monday for some lab work. The nephrologist wants to check on his potassium level which was high. She ended up changing his formula to Similac PM 60/40. She also increased his dialysis fill to 180 ccs. He tolerated it well last night.
Hopefully he sleeps as well tonight as he did last night. He did have a little help with oxygen last night. I hope he sleeps well , so I can too!
Our baby boy diagnosed with Lower Urinary Tract Obstruction/Post Urethral Valve(LUTO/PUV) at 20 wks, He was not expected to live due to pulmonary hypoplasia and renal failure, He was born June 19, 2009 @ 34 wks , He has miraculously survived and has began dialysis. Began Peritoneal Dialysis on June 22, 2009 then to Hemodialysis on June 27, 2009, back to PD July 7, 2009
Santino on one of his good days
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Enjoying my binky!
Mommy time
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This is the life in mommy's arms!
Daddy time
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Checking out my daddy
Snoozing after bath time
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Sponge baths are good!
Free of ventilator!!!
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This is what I look like w/out edema
Daddy holding Tino!
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Daddy changing Tino's diaper
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Baby Tino in my arms!
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Santino's eyes are open
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Isn't he just the cutest!!
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Big yawn!!!!!
Tino w/ hemodialysis catheter
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not a pretty thing, poor baby!
In the Children's NICU
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Santino after they placed the peritoneal catheter
I'm so glad you guys are home! Before Logey was old enough to be active, I always got more sleep at the hospital as well. Once he started getting active I got less sleep at the hospital and overall. Saying prayers about his potassium. Potassium still scares me even though Logey's is obviously very normal since transplant.
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